Sickle Cell Disease and Self-Management Tools
Document Type
Presentation
Presentation Date
11-12-2018
Abstract or Description
Presentation given at the American Public Health Association (APHA) Annual Conference.
Individuals with sickle cell disease (SCD) are living longer healthier lives. Advances in technology allow development of novel methods to deliver interventions using internet-based programs, including ability to track pain. Studies have determined the usability of technology-based interventions to monitor and manage SCD symptoms. Mobile technology provides an opportunity for individuals with SCD to increase access to health and disease management. Additionally, electronic health technology represents a more patient-centered, cost effective method to improve measurement of health outcomes, engage in behavioral interventions and facilitate provider-patient communication between individuals with SCD and their care team. Continual development of these technologies presents a unique opportunity to combine the strengths of each to create a patient-friendly and easily accessible SCD management platform. A systematic literature review investigated the strengths of applications using mobile and eHealth technology to identify the best elements that can be used to develop an effective application for smartphones. Articles included studies on SCD and self-management tools using technology for individuals with SCD of all ages. Eight studies were identified and organized by technology type. Self-management tools included features such as pain recording, mood tracking, visual calendars, familial support, a diary, confidential communication with physician/care team, sleep pattern tracking, health care usage tracking, and text message reminders. Based on qualitative feedback within the articles, an effective app should incorporate: pictures, peer support, pain trackers, individualized plans, communication with providers, and information transmission to a cloud system. Future studies should incorporate older adults with SCD and should extend application use to android phones.
Sponsorship/Conference/Institution
American Public Health Association (APHA) Annual Conference
Location
San Diego, CA
Source
https://apha.confex.com/apha/2018/meetingapp.cgi/Paper/424474
Recommended Citation
Quasie-Woode, Delores P., Tilicia Mayo-Gamble, Andrew R. Hansen.
2018.
"Sickle Cell Disease and Self-Management Tools."
Department of Health Policy and Community Health Faculty Presentations.
Presentation 269.
source: https://apha.confex.com/apha/2018/meetingapp.cgi/Paper/424474
https://digitalcommons.georgiasouthern.edu/hpmb-facpres/269
