Title

Adequacy of Insurance Coverage and Impact on Employment Among Families Caring for a Child With Cerebral Palsy

Document Type

Presentation

Publication Date

10-2016

Abstract

Background: Children with cerebral palsy (CP) require care from both healthcare providers and the family. The purpose of this study is to examine factors related to adequate insurance coverage and impact on family employment among families with a child with CP.

Methods: Data from a survey with a nationally representative sample examining children with special healthcare needs was analyzed. A total of 744 of participants reported having a child with CP. Logistic regression modeled the probability of adequate insurance coverage and impact on family employment.

Results: Families whose child missed fewer school days, had no unmet needs, no financial burden, or early screening were less likely to have employment negatively affected (adjusted OR [odds ration] = > 1, 95% CI [confidence interval], p = < 0.05). Whereas families who spent additional time caring for the child, and did not have a medical home were more likely to be negatively affected (OR < 1, 95% CI, p < 0.05). Families without unmet needs, fewer out-of-pocket expenses, or no financial burden, were more likely to have adequate coverage (adjusted OR = > 1, 95% CI, p = < 0.05). Families of children who missed fewer school days, did have not access to community-based services, did not engage in shared decision-making, and without a medical home were less likely to have adequate coverage (OR < 1, 95% CI, p < 0.05).

Conclusion: Complex factors affect families caring for a child with CP and policy changes may improve their quality of life.

Sponsorship/Conference/Institution

American Public Health Association Annual Conference (APHA)

Location

Denver, CO

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